I am disabled with RSD (Reflex Sympathetic Dystrophy) for several years now. It is a relatively unknown neurological condition that effects my entire sympathetic nervous system. It is chronic, progressive and incurable. In addition, I have neuropathy, sever, inoperable back issues and other health problems I deal with on a daily basis.
My goals are simple: How to live? How to improve my quality of life? What can I do today to make someone else's day better?
I have learned to live one day at at time and so far it has worked for me. I will not let my disease control my life. I refuse to be influenced by people with negative attitudes.
My first thought in the morning is not "poor me, I hurt". It is thank you GOD for another wonderful day. I also know in my heart today is going to be better than yesterday because I am going to make it that way.
Yes, I am in pain 24 hours a day. The pain is hot, burning and never lets up. I am also in a wheelchair, I only have the use of one hand and at times am unable to speak clearly. But these are symptoms of my disease, they do not define me.
They make me stronger, work harder and even more determined to someday walk again, unaided, and do all the things I can to enjoy life with my family.